Palliative patient data that improves care across the Fylde coast

Community nurse speaking to elderly patients

Palliative patient data that improves care across the Fylde coast

Blackpool Teaching Hospitals NHS Foundation Trust are using the Medical Interoperability Gateway (MIG) to share patient Electronic Palliative Care Coordination System Records (EPaCCs) across a variety of different health and care organisations.

Background

Blackpool Teaching Hospitals NHS Foundation Trust provides a range of acute services to the 330,000 population on the Fylde coast as well as a range of community health services to the 445,000 residents of Blackpool, Fylde, Wyre and North Lancashire.

Previously, healthcare staff had no consistent way of recording and sharing an individuals end of life preferences electronically and relied on a paper-based system. With limited information about care planning, there was an increased risk of unnecessary admission and delays in discharge.

To provide continuity of care to patients, the Trust looked to make it easier for health care professionals to access a patient EPaCCs record electronically. With access to an EPaCCs record, a patient’s preferences and key details about their end of life care could be shared across organisations to improve coordination of care, planning care and anticipation of crisis.

What did they do?

In 2016 the Trust implemented the MIG’s Detailed Care Record (DCR) and EPaCCs Dataset.  They began by accrediting their in-house system ‘Nexus’ to allow integration with the MIG. This was followed by integrating Adastra used by the Out of Hours services (OOH). With the MIG successfully integrated, the EPaCCs dataset was then available to healthcare professionals as an embedded view in the system they used day to day, by clinicians in accident and emergency (A&E), acute medical unit (AMU), frailty wards and community nurses.

Today, using the MIG the OOH service views vital EPaCCs information as an embedded view in Adastra. On accessing patient records, clinicians are notified by an alert if an EPaCCs record exists and are prompted to view at the point of care.

Reducing unnecessary admissions

This information is also being used to inform The North West Ambulance Service (NWAS) in particular, paramedics.

When a patient or relative calls the 111 service, call handlers can respond efficiently by accessing EPaCCs information. An alert notifies the call handler the patient is under the care of the care coordination service and that an EPaCCs is in place. The patient is then directed to the care coordination team in OOH to receive direct access to a GP.

The benefits of accessing an EPaCCs record

The Trust has found the MIG invaluable. Instant access to real-time patient information supports medical decisions in line with patient wishes.

“EPaCCs has provided a platform for end of life decisions and conversations to be documented and shared in such a way that clinicians in both the community and acute settings can access it. This has meant that patients who might otherwise have faced either a lengthy hospital stay or death in a hospital bed are now much more likely to be cared for and die in their preferred place.”

A holistic view of a patient’s medical record and end of life desires is presented in one view, including background information about medications, end of life care status and any prior discussions about the preferences and treatment decisions of the patient, which is crucial to the coordination and delivery of palliative care. This ensures everyone involved in a patients care plan can see their wishes and any care they receive is in line with what they have decided.

In Blackpool the MIG has allowed a patient’s care plan to be followed:

“A patient presented at the Emergency Department (ED) who was in the last days of his life, all the appropriate arrangements were in place to care for him at home and he had an EPaCCS record. Upon arrival in ED the patient was not able to communicate and his wife was too upset to communicate effectively. We were able to access his EPaCCS record and establish that his GP had spoken to him about his preferred place of death and that he wanted to be at home. As a result of this the patient was taken home where he died peacefully in-line with his wishes. Without having access to the MIG, the patient would undoubtedly have been admitted.”

The creation and accessing the EPaCCs record allowed the patient’s wishes to be fulfilled and enabled the best outcome for both the patient and family.

From a clinician’s point of view, being able to access the EPaCCs record enables clinical staff to make more informed decisions around care and treatment, whilst recognising the patient’s wishes and preferences.

Find out more

To find out how your organisation can access the MIG EPaCCs dataset or to arrange an online demonstration, get in touch here.

IKR

MIG data in Connecting Care supports better, safer care across the Bristol Area

Connecting care in Bristol.

MIG data in Connecting Care supports better, safer care across the Bristol Area

Access to vital GP and community care patient data via the Medical Interoperability Gateway (MIG) is increasing healthcare efficiency and improving care quality for over a million people in Bristol and its surrounding area.

Starting in 2013, the Connecting Care Partnership has brought together a shared care record from across Bristol, North Somerset and South Gloucestershire. Today, it supports 85 GP practices, three community providers, three acute hospitals, a mental health trust and three councils. Connecting Care brings together 20 clinical and social care systems allowing 24 health and care organisations to view the data.

The MIG, from Healthcare Gateway, is a core element of Connecting Care, giving over 6,000 health and care professionals role-based access to primary care and community health records, End of Life Care Plans, clinical letters and correspondence from the three acute hospitals in the region. Presenting information such as patient demographics, medications, diagnoses, prescriptions, warnings and alerts, the MIG’s easily-accessible summary views support faster, more informed care decisions that reduce duplication and mistakes, prevent unnecessary hospital admissions and increase delivery efficiency.

“Our colleagues in health and the councils now release time to care because they don’t have to search around for information anymore.

Pre-operative assessment used to take around 2.5 hours per person. Now it takes under a minute. Bristol City Council safeguarding team now spend 15% less time dealing with telephone calls from health colleagues with safeguarding concerns about their patients. It also helps reduce hospital admissions if clinical staff can see that there is alternative care in place and unnecessary home visits if staff can see that someone has already been admitted.

The GP and community care data that the MIG supplies is the bedrock of Connecting Care. Over the last six years, we have gradually expanded the number of MIG views and the amount of data we present.

The MIG allows us to display information across health and care settings. GPs and Social Workers can see clinical letters and correspondence including hospital discharge summaries while hospital doctors and consultants can check GP medical histories when caring for new patients. Many GPs like the MIG’s summary view because it is so clear and information is easy to find.”

Out-of-hours GPs were one of the first groups to benefit when Connecting Care went live in 2013. Before that, endless phone calls and letters were the only way to find missing information.

“We had no idea about past prescribing, recent GP visits, safeguarding, no documents, no results, nothing. Without that patient history, extra risk is unavoidable. When Connecting Care became available, it was like the lights going on – it was a massive step forward. You could see that patients had consulted their doctor or that a care plan was in place.”

There is now no need to retake patient histories. Any new information is merged with the existing record. Instant access to GP information, End of Life Care plans and clinical documents reduces out-of-hours workload and enables better quality care.

“During out of hours care in the past, if we couldn’t get through to a patient on the phone, we had to ask the police or fire brigade to knock the door down and make sure patients hadn’t collapsed. Now we can see if they were admitted to hospital and can contact the consultant or GP. Connecting Care has saved me a tremendous amount of time and spared a lot of Bristol’s front doors!”

Since 2016, Connecting Care has been using a Restful FHIR API to transform structured data into messages that display controlled drug and Opioid Substitution Therapy information to substance misuse workers, GPs and other clinical users.

This plugs a gap and helps prevent duplicate prescribing of opiate substitutes like methadone and subutex – avoiding substance misuse, reducing costs and supporting clinical efficiency. Adopting FHIR messaging represents significant progress in Connecting Care’s journey towards open standards.

“Along with allergies, mental health issues and other health conditions, we can see which medication their GP has prescribed which is really effective in avoiding duplicate prescribing. Before, we would be calling the GPs right, left and centre so it’s definitely saved us a lot of time. We help people who haven’t got a GP so MIG data is very useful to find out if they are already registered or not.”

Role-based access to Connecting Care data reveals upcoming outpatient and community appointments. Instant record checking out of hours and at weekends now enables the NHS Blood and Transplant team to safely carry out their important work. At North Bristol Trust, two pharmacy staff who used to spend every day telephoning GPs for medication information have more time to spend on core work.

Connecting Care has more partners contributing and viewing MIG data than any other UK interoperability programme, hitting a new peak of 37,500 user views in May 2019. MIG is supporting Connecting Care’s use of national interoperability standards, structured data and bidirectional data flows. The latter will help support initiatives like personal health records and future care plans where individuals and healthcare users alike can check and update vital data contemporaneously from any setting.

“One of our most valuable additions via MIG has been the GP journal view, which displays consultation notes. The End of Life summary view was the first time that we used structured data from MIG. It’s a great first step to achieving the holy grail of a real-time read / write shared care plan. We and our partners have come a long way together, but there’s still a lot more work to do.”

Offering sophisticated and flexible “integration technology”, the MIG currently connects over 4000 health and social care providers within the UK, sharing a total of 30 million patient records. More are being added all the time.

Find out more

To arrange an online demonstration or to find out how the MIG is being used in your area, please get in touch here.

IKR

The MIG now provides patient data direct to all GP systems

GP record

The MIG now provides patient data direct to all GP systems

We’re pleased to announce The Medical Interoperability Gateway (MIG) most recent enhancement enables all GP systems to consume any available MIG dataset.

This includes our Mental Health Dataset from Access Rio and Adult Social Care Dataset from Liquidlogic. GPs have consumed MIG data for some time but our latest enhancement allows a direct feed to all four primary care software provider systems: EMIS, Vision, TPP and Microtest with patient data, in a single view, at the point of care.

Organisational feeds of data provide GPs with a holistic view of a patient’s medical information which is relevant to their specific condition, helping them to make informed clinical decisions.

“It’s fantastic that the MIG can now feed rich patient data from health or social care organisations into all GP provider systems across the country. By enabling all MIG data flows into primary care, a GP is armed with real-time specialised data from other health and social care setting to support and improve care. At Healthcare Gateway we continually develop our interoperability capabilities to provide products and services that really join up the health and social care landscape, today!”

Looking ahead at primary care digital development brought about through GP IT Futures, new providers of care systems in the GP space, will also have the ability to integrate the MIG to safely and securely share patient records to transform care in primary care.

What are the benefits for GPs?      

  • a holistic view of patient medical information which is relevant to their specific condition
  • instant access to real-time data from different healthcare settings
  • valuable data which is seamlessly integrated within your existing system
  • improved information sharing between acute trusts and primary care services

If you would like to find out more about health and social care data integration with your primary care system, please register your interest here.

IKR

Forcare is now accredited for MIG services

Forcare logo

Forcare is now accredited for MIG services

We’re pleased to announce our newest partner Forcare, are now accredited for the Medical Interoperability Gateway (MIG).

Forcare’s intelligent software and Health Information Exchange (HIE) platform, which makes complex data available and accessible to healthcare professionals, have been accredited for the Detailed Care Record (DCR). Access to patient data via the MIG will give users of Forcare 24/7 access, in real time to patient data from multiple system providers.

The solution is currently being rolled out across four Clinical Commissioning Groups (CCGs): Liverpool, Sefton and Southport and Formby. The CCGs will access feeds of patient data from GP clinical systems and view with a single sign on within their Forcare application.

“We are delighted to announce Forcare as our newest partner of the MIG. This connectivity will enable the real time sharing of GP, Community, Mental Health and Social Care patient information to clinicians when and where they need it. We are excited that the service is now live across the North West of England.”

“Forcare shares the MIG’s aims of improving healthcare, by seamlessly linking patient information from different sources. Our solutions ensure maximum connectivity between existing systems, turning silos of data into useful patient information, to empower data flow and workflow. We are very happy to partner up with the MIG to support the CCGs in Liverpool, Sefton and Southport and Formby.”

To find out more about the accreditation process and the benefits of integrating with the MIG, go to the partner section of our website. To find out if the system you use is a Healthcare Gateway partner, use our Partner search function here.

IKR

Think regionally, succeed nationally: making NHS interoperability happen

Peter Anderson portrait

Think regionally, succeed nationally: making NHS interoperability happen

Peter Anderson, Managing Director of Healthcare Gateway discusses interoperability within the NHS.

The new NHS Long-Term Plan aims squarely for mainstream digitally-enabled care, and patient record sharing is one of its foundations. Without it, the much-heralded digital transformation will simply not happen. But with NHS IT still fractured into disconnected silos, how can we move towards it?

Matt Hancock’s energetic drive for open standards and a modern Internet-based, mobile-first “plug and play” IT infrastructure is taking us in the right direction. Incumbent vendors must upgrade their systems to become interoperable. And national open standards are vital and should be enforced. As a participant in bodies like PRSB and INTEROPen, I say more power to him.

But even if we had all the necessary standards today, it could take years to build on them. New software components must be written, and existing systems upgraded.

As well as top-down focus, we need renewed regional effort to get UK record sharing moving, with CCIOs and CIOs in NHS trusts accepting and working with current standards and today’s systems. Applying commonsense, proven  – yet often ignored – IT project delivery capability and being open minded about what they add to their integration toolkits will help them give clinical users the information they need.

There is no secret recipe to the interoperability success stories I’ve seen over decades of working in NHS IT. They aren’t over-ambitious and instead recognise that they are on a journey. They identify the data sources with the most clinical value, check if they are available and prioritise them for integration. They plan for the long term but deliver benefits quickly to keep clinical users motivated.

So, we need to be very clear about early objectives and ensure full clinician engagement. Build project teams and make sure you second clinicians to them, forming a core project team that will stay the course. The lure of the “big bang” approach traps so many, for example, trying to make source-system data perfect before allowing it to be shared. Better to accept the existing data quality – but add a data cleansing and enhancement strand to the roadmap.

There’s no need to make every system talk to every single other one right away either. The Bristol, North Somerset & South Gloucestershire Connecting Care project started by giving social care out-of-hours access to primary care records, then progressed to an HTML view of community care data. Choosing that approach rather than full interoperability let most of the clinical benefit arrive very quickly.

Clinicians within Connecting Care now use Healthcare Gateway’s Medical Interoperability Gateway (MIG) to access 180,000 views of patient records every month, as well as sharing discharge letters and clinical correspondence with a wide range of health and social care organisations.

Of course, the foundations must be right for the future too. The infrastructure must be flexible and scalable enough to cope with more users and extra connected systems. And it has to keep working when the source systems do finally talk to each other as standard.

For the same reasons, creating the right data sharing consent model allows programme expansion without having to go back to the stakeholders and re-engage every time. Projects we’ve worked on like the Great North Care Record in the northeast of England implemented clear “umbrella” consent policies that let their long-term data sharing programmes grow steadily.

Actions like planning for data consent and stakeholder consultation might seem obvious. After all, they are standard IT best practice. But so often, after agreeing on a sensible way to proceed, a project bogs down in bureaucracy. It’s too easy to get sucked into waiting for some future decision which you have no control over.

Adopting national standards is another example of where this has been happening. Of course, the NHS is rightly a risk-averse organisation but finding ways to speed up connectivity approval processes would really help make common standards widely used and accepted.

There are plenty of good case studies to learn from, like the OneLondon LHCRE programme that Matt Hancock highlighted in his “The Future of Healthcare” policy paper last autumn. It covers a patient population of around 6.3 million and the MIG is one of several proven solutions involved, currently supporting around 1.2 million views of patient data every month.

By connecting legacy technology region by region using the effective tools already available, the NHS can steer towards the common goal of nationwide record sharing while steadily introducing new national data mobility standards and the software that complies with them.

IKR